Part 3: Partnerships in Genomic Research - Integrating ELSI Frameworks as a Best Practice

Sarah Tishkoff is the David and Lyn Silfen University Professor in Genetics and Biology at the University of Pennsylvania, holding appointments in the School of Medicine and the School of Arts and Sciences. She is also the Director of the Penn Center for Global Genomics & Health Equity in the Department of Genetics. Dr. Tishkoff studies genomic and phenotypic variation in ethnically diverse Africans. Her research combines field work, laboratory research, and computational methods to examine African population history, the genetic basis of anthropometric, cardiovascular, and immune related traits, and how humans have adapted to diverse environments and diets.  She plays an active role as an advocate for the inclusion of ethnically diverse global populations in human genetics and genomics research.

Nanibaa’ Garrison (Navajo), Ph.D. is an Associate Professor at the University of California, Los Angeles. She has appointments in the Institute for Society and Genetics, the Institute for Precision Health, and the Division of General Internal Medicine & Health Services Research. Her research focuses on the ethical, social, and cultural implications of genetic and genomic research with Indigenous peoples. Using community-based research approaches, she engages with Tribal communities to develop policies and guidance regarding genetic and genomic research.

Amy Lemke, PhD, MS, is an Associate Professor in the Division of Pediatric Clinical and Translational Research at the University of Louisville. She also serves as Director of Community Engaged Research at the Norton Children’s Research Institute Affiliated with the University of Louisville School of Medicine. Her research focuses on the impact and outcomes of emerging genomic technologies in research and clinical care, including studies to assess ethical and social issues involved in the collection and management of genomic health data and return of results. She is actively involved in the development and implementation of community engaged research strategies in genomics research and clinical genomics, and co-led the American Society of Human Genetics published guidance on Addressing Underrepresentation in Genomics Research through Community Engagement.