Part 1: Introduction - Scientific and Ethical Frameworks for the Responsible Use of Population Descriptors

Daphne Martschenko is an Assistant Professor at the Stanford Center for Biomedical Ethics. Her work advocates for and facilitates research efforts that promote the socially and ethically responsible conduct and communication of and public engagement with human genetics and genomics. She is currently co-writing a book (under contract with Princeton University Press) with Sam Trejo, a quantitative sociologist who uses genomic data in his research. The book, titled the “The Acid We Inherit,” is an adversarial collaboration that delves into the debates and controversies surrounding research connecting DNA to social and behavioral outcomes. 

Dr. Genevieve Wojcik is a genetic epidemiologist and Assistant Professor of Epidemiology at the Johns Hopkins Bloomberg School of Public Health. She holds a BA in Biology from Cornell University, an MHS in Human Genetics/Genetic Epidemiology and a PhD in Epidemiology from Johns Hopkins Bloomberg School of Public Health, and conducted her postdoctoral training at Stanford University. Her research program focuses on understanding the role of ancestry and environment in genetic risk and developing solutions to address health inequities for diverse and admixed groups. Dr. Wojcik was a contributing member of the 2023 NASEM report on the Use of Race, Ethnicity, and Ancestry as Population Descriptors in Genomics Research, and is currently serving on the NASEM Committee on The Use of Race and Ethnicity in Biomedical Research. 

Rosario Isasi, J.D., M.P.H., is an Associate Professor of Human Genetics at the Dr. J. T. Macdonald Foundation Department of Human Genetics at the University of Miami Miller School of Medicine and Adjunct Professor of Law at UM School of Law. Her research is devoted to identifying and analyzing the social, ethical and policy dimensions of disruptive technologies (e.g., precision, genomics, and regenerative medicine) and is internationally recognized as an expert in   international comparative law, ethics, and health disparities. She holds many leadership roles in major national and international initiatives. As a recognition of her scholarly contributions, from 2017-2019 she was appointed as President’s International Fellow of the Chinese Academy of Sciences.