Digital CoLab: Patient engagement and eConsent: Implementation in research and care settings*
- Regular Member - Free!
- Early Career Member - Free!
- Resident/Clinical Fellow Member - Free!
- Postdoctoral Fellow Member - Free!
- Graduate Student Member - Free!
- Undergraduate Student Member - Free!
- Emeritus Member - Free!
- Life Member - Free!
- Trainee Member - Free!
- Nonmember - Free!
Genomics-based medicine and care become even more powerful when combined with clinical and phenotypic data sets. To achieve this, research programs must aim to engage patients in their research to consent and perform data collection. Without patients consenting to data collection and sharing, research programs stand still.
Join this session if you’re part of a research team aiming to expand a genomics medicine program, engage individuals in precision health research, increase cohort diversity, or improve an existing patient experience.
The discussion will explore how digital methods are in use by both small and large-scale research programs to eConsent patients, gather biospecimens and phenotypic data, and communicate with patients effectively. Our presenters will draw from the real-world evidence from the SuperAgers Family Study, Mount Sinai Million Discoveries Project, the NIH All of Us Research Program, and other studies to illustrate what all human cohort studies can learn and adopt to increase diversity, size, and scientific value of research cohorts.
- Explore best practices from the most successful research programs for patient engagement
- Understand how to overcome the challenges with eConsent, and multi-modal consent
- Discover how digital methods can improve phenotypic, clinical, and genomic data collection
*By registering for and attending this session, you consent to share your contact information with the sponsor of this session. Please view the disclaimer tab for more information.
- By clicking on the registration and event links for this session, please recognize you are attending a webinar hosted by the sponsoring company.
- By clicking on the registration and event links for this session, you agree to share your name and email address with the sponsoring company. You may be contacted regarding your session attendance and future interest in the company’s products or services.
- The hosting of any promotional material, links, or sessions on the ASHG website or the ASHG Learning Center does not indicate an endorsement by ASHG of the products or services promoted, the company, or the claims made. ASHG does not sell, rent, or share member contact information. Any additional information you choose to share will be shared with the company directly, and you may request to be removed from their mailing lists at any time.