Digital CoLab: Patient engagement and eConsent: Implementation in research and care settings*

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Genomics-based medicine and care become even more powerful when combined with clinical and phenotypic data sets. To achieve this, research programs must aim to engage patients in their research to consent and perform data collection. Without patients consenting to data collection and sharing, research programs stand still. 

Join this session if you’re part of a research team aiming to expand a genomics medicine program, engage individuals in precision health research, increase cohort diversity, or improve an existing patient experience. 

The discussion will explore how digital methods are in use by both small and large-scale research programs to eConsent patients, gather biospecimens and phenotypic data, and communicate with patients effectively. Our presenters will draw from the real-world evidence from the SuperAgers Family Study, Mount Sinai Million Discoveries Project, the NIH All of Us Research Program, and other studies to illustrate what all human cohort studies can learn and adopt to increase diversity, size, and scientific value of research cohorts.

  • Explore best practices from the most successful research programs for patient engagement
  • Understand how to overcome the challenges with eConsent, and multi-modal consent
  • Discover how digital methods can improve phenotypic, clinical, and genomic data collection

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Digital Co-Lab: Patient engagement and eConsent: Implementation in research and care settings
05/18/2023 at 2:00 PM (EDT)  |  Recorded On: 05/18/2023
05/18/2023 at 2:00 PM (EDT)  |  Recorded On: 05/18/2023